porphyrias

    Top: Health: Conditions_and_Diseases: Nutrition_and_Metabolism_Disorders: Porphyrias:

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• - Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
  
• - Offers links and articles about Porphyria.
  
• - Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
  
• - An e-mail sent to Professor Huskey from a person working on a rescue squad.
  
• - Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
  
• - From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
  
• - An e-mail group at Yahoo dealing with the metabolic disease porphyria.
  
• - Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
  
• - Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
  
• - Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
  
• - Information on porphyrias including the various types and its management.
  
• - Information and links about Porph. Includes registration form for an email list.
  
• - An article by Thomas G. DeLoughery, Associate Professor of Medicine.
  
• - Review on this book on porphyria written by Lenore B. Weinstein.
  
• - Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
  
• - A patient guide for all people with this disorder. Compiled by Professor Michael Moore.