tuberous sclerosis

    Top: Health: Conditions_and_Diseases: Neurological_Disorders: Neurodegenerative_Diseases: Tuberous_Sclerosis:

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• - Offers commonly asked questions about this disease.
  
• - US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
  
• - Marian's story. Information about the disease, pictures, contacts, medicine, links.
  
• - Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
  
• - Offers alternative names, a general discussion and further resources.
  
• - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  
• - Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
  
• - A brief definition of, followed by links to overviews, research articles, case reports and images.
  
• - A list of synonyms, a summary and major features of tuberous sclerosis.
  
• - UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
  
• - Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
  
• - Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
  
• - Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
  
• - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
  
• - An incurable genetic condition that causes tumors to grow in various places in the body.