spinal muscular atrophy

    Top: Health: Conditions_and_Diseases: Neurological_Disorders: Muscle_Diseases: Spinal_Muscular_Atrophy:

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• - Canadian charity supports research into a cure for SMA.
  
• - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
  
• - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
  
• - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
  
• - Information on SMA, and the latest updates in research, treatment and funding.
  
• - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
  
• - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
  
• - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
  
• - A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
  
• - I am two years old and I have SMA2.
  
• - Information about an annual walk to raise money to find a cure for spinal muscular atrophy. Learn about SMA and read Emily's story.
  
• - Web site promoting public awareness for spinal muscular atrophy.
  
• - Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
  
• - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
  
• - International support group and resource center for this disease, includes current research.
  
• - Information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
  
• - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
  
• - This site contains a collection of material pertaining to SMA. I have been searching facts on SMA ever since our son was diagnosed with the disease in 1994.