marfan syndrome

    Top: Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue: Marfan_Syndrome:

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• - Support group in New South Wales, Australia.
  
• - This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
  
• - Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
  
• - Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
  
• - A comprehensive site including major resources listed as well as genetic information.
  
• - Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison.
  
• - Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease.
  
• - General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
  
• - Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
  
• - Article on the risks of sports participation.
  
• - Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
  
• - Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.
  
• - A tribute to a patient with this disease accompanied by information and links related to donating.
  
• - Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
  
• - Online chapter from The Merck Manual of Medical Information.
  
• - Personal site by which describes the pathology and gives a bit of advice.
  
• - Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
  
• - Includes a survey for study and links to useful sites.
  
• - A history of the pharoah along with theories applied to what he may have had, including Marfan's.
  
• - Information about an e-mail mailing list. Also includes links to other online support groups.
  
• - A global information center providing links to Organizations around the world.
  
• - From the National Institutes of Health.
  
• - Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
  
• - What the disease is and includes the impacts on daily life.
  
• - Irish charity with information on fund raising activities and the condition.
  
• - Marfan's patients diary of the diseases events in her life. Includes a list of links.
  
• - The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
  
• - Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
  
• - Providing accurate and timely information about the disorder to patients, family members and physicians.
  
• - Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
  
• - The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
  
  

• Usenet alt.support.marfan - news: - Google Groups