personal pages

    Top: Health: Conditions_and_Diseases: Genetic_Disorders: Personal_Pages:

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• - Personal page for kids and parents about genetic disorders, especially mannosidosis.
  
• - A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
  
• - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
  
• - Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
  
• - The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
  
• - The author request help from geneticists, neuroscientists, pharmaceuticals or biotech companies.
  
• - Information on this rare chromosomal abnormality.
  
• - Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
  
• - A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease.
  
• - Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.
  
• - Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
  
• - One man's perspective and journey with A1AD and a list of links and other resources from the internet.